Prematurity is For Life, Not Just the Neonatal Unit

The Irish Neonatal Health Alliance (INHA) is Ireland’s first collaborative platform and network to represent the interests of preterm infants, ill infants in the Neonatal Intensive Care Units (NICU) and their families.

Their vision is to support and empower families affected by prematurity by advocating increased awareness, improved pre-conceptual, ante-natal and post-natal education, equitable and standardized neonatal care and improved long-term care for both the premature baby and the family.¹

In this presentation, Mandy Daly, co-founder of the INHA, explores the journeys of neonatal patient and parents and the relationship that they have with a broad range of stakeholders to address their needs.

She highlights the care pathways in preterm birth and the role that healthcare professionals and families can play in that care pathway serve to improve outcomes of babies and weave in her own lived experiences.

References

1. Irish Neonatal Health Alliance. [online] Available at: https://www.inha.ie/who-we-are/

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• Mandy Daly

  Co-founder of the Irish Neonatal Health Alliance

  Read biography
  Mandy Daly

  Co-founder of the Irish Neonatal Health Alliance

  Role and Location
  Mandy is a medical and disability underwriter and a parent of a preterm infant born in 2006. Since that time, she has been advocating in the neonatal space and in 2013 she founded the collaborative multi-stakeholder platform, The Irish Neonatal Health Alliance.

  Research
  Her many successes in the field include effecting several neonatal and paediatric health system reviews, developing and delivering curricula and continued education to medical, nursing and allied health professional students, mentoring PhD students, serving on the parent advisory board of the European Foundation For The Care Of Newborn Infants and the Newborn Individualized Care and Assessment Program (NIDCAP) Federation International Board since 2012 and working as patient collaborator on several national and international research studies.

  Memberships
  Mandy was a chair committee member of group that developed the European Standards of Care for Newborn health and has published papers in several journals including the British Medical Journal, The Lancet, The Journal of Obstetrics and Gynaecology and Trials. She is also a member of the HRB Neonatal Encephalopathy PhD Training Network (NEPTuNE) Steering Committee.