Digital Innovation in Cystic Fibrosis Care
The way in which clinicians interact with patients has changed over recent years. The prevalence of digital communication has increased not only due to the COVID-19 pandemic, but also due to the wishes of Cystic Fibrosis patients. The availability of new technologies, concerns of cross infection and financial burden of travel to and from centres of care are just a few reasons Cystic Fibrosis patients have wished for more opportunities of remote consultations. This has led to discussions around the wants and needs of patients to develop technology to help.
Dr Sue Madge explores how the needs of both patients and clinicians were captured in order to develop a digital platform from which health related information can be shared between HCPs and patients. The complications that have arisen during the development of the platform are also discussed, along with the way in which the COVID pandemic has impacted the use of the platform and its value to the wider multidisciplinary team.
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Dr Su Madge
Dr Madge is an Associate Director of Adult Cystic Fibrosis and a Consultant Nurse at the Royal Brompton Hospital. Her areas of interest and research include adolescence, fertility and pregnancy, quality of life and end of life issues. She is involved nationally and internationally in various aspects of CF care.