{"id":2095,"date":"2025-02-06T20:49:51","date_gmt":"2025-02-06T20:49:51","guid":{"rendered":"https:\/\/www.chiesimedical.co.uk\/patient\/?page_id=2095"},"modified":"2025-02-07T09:16:49","modified_gmt":"2025-02-07T09:16:49","slug":"living-well-with-fabry-shared-decision-making-toolkit","status":"publish","type":"page","link":"https:\/\/www.chiesimedical.co.uk\/patient\/therapy-areas\/rare-diseases\/fabry-disease\/living-well-with-fabry-shared-decision-making-toolkit\/","title":{"rendered":"Living well with Fabry shared decision making toolkit\u00a0"},"content":{"rendered":"\n<\/br>\n\n\n\n<p class=\"has-medium-font-size wp-block-paragraph\">Managing Fabry disease can be challenging, and initiating conversations with your specialist about your needs is not always straightforward. To help, the \u2018Living well with Fabry: a shared decision-making toolkit\u2019 has been developed, informed by insights from individuals living with Fabry and Fabry specialists. \u202fThis toolkit was funded by Chiesi Limited and developed in collaboration with\u202fRare Disease Research Partners.&nbsp;<\/p>\n\n\n\n<p class=\"has-medium-font-size wp-block-paragraph\">This toolkit aims to:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list has-medium-font-size\">\n<li>Enhance your preparedness for medical appointments&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list has-medium-font-size\">\n<li>Boost your confidence in discussing health concerns&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list has-medium-font-size\">\n<li>Increase your specialist&#8217;s awareness of Fabry&#8217;s impact on your life&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list has-medium-font-size\">\n<li>Provide questions to deepen your knowledge of the condition and care options&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list has-medium-font-size\">\n<li>Encourage active participation in care decisions&nbsp;<\/li>\n<\/ul>\n\n\n\n<p class=\"has-medium-font-size wp-block-paragraph\">You can download the toolkit <a download=\"\" href=\"https:\/\/www.chiesimedical.co.uk\/patient\/wp-content\/uploads\/2025\/02\/living-well-with-fabry-shared-decision-making-toolkit-print.pdf\"><strong>here<\/strong><\/a>, an editable version <a download=\"\" href=\"https:\/\/www.chiesimedical.co.uk\/patient\/wp-content\/uploads\/2025\/02\/living-well-with-fabry-shared-decision-making-toolkit-editable.pdf\"><strong>here<\/strong><\/a> and the supporting document <a download=\"\" href=\"https:\/\/www.chiesimedical.co.uk\/patient\/wp-content\/uploads\/2025\/02\/living-well-with-fabry-shared-decision-making-toolkit-supporting-document.pdf\"><strong>here<\/strong><\/a>. The supporting document offers detailed guidance on using the toolkit.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Managing Fabry disease can be challenging, and initiating conversations with your specialist about your needs is not always straightforward. To help, the \u2018Living well with Fabry: a shared decision-making toolkit\u2019 has been developed, informed by insights from individuals living with Fabry and Fabry specialists. \u202fThis toolkit was funded by Chiesi Limited and developed in collaboration [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":738,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"templates\/rare-diseases-fabry.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-2095","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/pages\/2095","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/comments?post=2095"}],"version-history":[{"count":7,"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/pages\/2095\/revisions"}],"predecessor-version":[{"id":2130,"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/pages\/2095\/revisions\/2130"}],"up":[{"embeddable":true,"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/pages\/738"}],"wp:attachment":[{"href":"https:\/\/www.chiesimedical.co.uk\/patient\/wp-json\/wp\/v2\/media?parent=2095"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}